Thursday, May 8, 2008


Mike seems to be doing "OK. Nothing else happened after his fever Sunday night, although we did notice the side of his face was swollen. Since he has no teeth, I was confused as to what that could be from. He is entitled, through his insurance, to be seen by a visiting dentist which we expect today. I'm concerned that maybe a piece of tooth was left in and could have caused an infection - who knows/?!!
His toe is looking better though, so that's a good thing. He is still on the antibiotic.
Yesterday I spoke at a community forum at Suffolk Community College which was sponsored by New York State and the Alzheimer's Assocation. It's purpose was to hear from caregivers and people in the field to try and find ways to make things better for patients and their families. I feel it went well, although one of the hardest things for me when I speak is hearing the collective "gasp' when I mention the age that Mike was diagnosed. When I first started speaking out, that would always shake me up and I would begin to cry. I am relieved to say, that even though that gasp was quite audible yesterday, I held my own and made it through my comments without a tear. The stories that were shared were often quite moving. All we can hope is that our voices were actually heard and that a positive change will come from our efforts.

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