Wednesday, January 13, 2010
Advocacy Forum (DC)
This March I hope to attend the Alzheimer Association's Advocacy Forum in Washington DC. I have wanted to attend for years, but have never been able to make it happen because of either Mike's status or timing at work or money. Now that the time has come to start making reservations, I am still hoping I can do it this year. The kids and I would LOVE to go to Capital Hill and advocate for more research and money. Each Advocate leaves behind an information packet for their Congressman and we hope to include a special page about Mike and his struggle with the disease and the reality of keeping a loved one at home. I plan to include pictures that show the ravages of the disease so that the next time a bill comes before Congress, our representative may remember our image when they go to vote. I really feel like this could be one of the most important trips we make and that's why we are attempting to do this instead of going someplace "fun" for the weekend (We haven't had a "real" vacation in about 5 years). The planning involved in this will be extensive, as we would have to place Mike in respite for the days we are away. In doing this, I would need to go and visit the facility ahead of time to insure that it's satisfactory. I would have his aide stay with him during the day so I know someone familiar with him and his habits would be there with him. We would need to plan our departure around his stay for both coming and going. Financially, it will take alot: between the train, hotel, food, and paying his aide, but I really feel strongly about this. Whatever sacrifices I need to make, I will, so we can do our part in reaching out personally to those who actually make these decisions.