Follow You, Follow Me: Our Journey

Follow You, Follow Me: A Young Family's Journey With Young-Onset Alzheimer's Disease

Thursday, May 23, 2013

Courtney's Graduation

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This past Sunday, May 19, 2013 Courtney graduated from Hofstra University. She graduated Magna Cum Laude, with Honors and was selected for...
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Tuesday, April 9, 2013

Mike's Legacy

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While it's easy for me to say that my children are one of Mike's most important legacies, I was touched today in the oddest of place...
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Friday, February 22, 2013

Genuine Happiness for Others

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For the 11 years Mike was sick, we very often heard about friends and family taking trips, or even doing what seemed like mundane things to ...
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Friday, January 18, 2013

Daily Struggles

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The kids and I got through the holidays as well as I expected. Christmas was quiet as it was just us. It's times like this when I wish I...
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Thursday, December 6, 2012

Holidays

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“Through the years we’ll always be together..if the fates allow, Hang a shining star upon the highest bough, and have your self a merry li...
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Saturday, December 1, 2012

Long Island Alzheimer's Foundation Honor

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Every year during the month of November - Alzheimer's Awareness Month - the Long Island Alzheimer's Foundation (LIAF) holds a cand...
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Saturday, November 10, 2012

Hurricane Sandy

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A week before most news stations picked up on the story, my nephew, Steve Travis (my personal meteorologist) contacted us to let us know Lon...
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About Me

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Karen
My husband Mike was diagnosed at the age of 36 with Young Onset Alzheimer's Disease. For almost 11 years, my children & I took care of Mike at home - until he passed away on February 28, 2012 at the age of 47. When Mike was first diagnosed, he gave me "permission" to place him in a nursing home, but I chose not to do that. With the help of my children, family &aides, I kept the promise to myself that I would keep him home until the "end". I began this blog about 5 years ago to keep family and friends updated on Mike's condition as he weathered some difficult health issues and hospitalizations. During the process, it became a method for me to vent about issues that directly effected us as a family caring for someone with AD. Nothing along this journey has been easy & I will continue to advocate & be the voice for all those patients who have been silenced by Alzheimer's Disease. NO ONE SURVIVES ALZHEIMER'S, the disease does not discriminate and I will do all I can to make a difference. My faith has been my strength and we have been blessed with MANY angels along the way. Mike will always be my hero!
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